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Duchenne Muscular Dystrophy (DMD) is a serious condition that causes progressive muscle weakness. Harry was diagnosed in 2013 at the age of 5, he's incredible, funny and is determined to remain as independent as possible for as long as possible. 

LIVING LIFE!
HELP4HARRY

Welcome to our new website.........

1 in 3500

Boys born with Duchenne

2500

People living with DMD in the UK

0

Cures

1

Harry

Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy (DMD) is a neuromuscular condition caused by the lack of a protein called dystrophin. It is a serious condition that causes progressive muscle weakness. About 100 boys with Duchenne muscular dystrophy are born in the United Kingdom each year.

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Upcoming Events

With family and friends we continue to raise awareness, support ongoing research and raise funds to support Harry.

HarryBarnley

HOW YOU CAN HELP

As well as joining organised events raising awareness and money for important research we also crowdfund to help purchase equipment, helping Harry be as independent as possible. 

All the Latest Updates

Harry has regular check ups locally and at Great Ormond Street Hospital

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Harry

Using an active wheelchair Harry has taken up boxing, gym workouts, rowing and has even started skiing. 

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